Sunday, September 14, 2014
Wonderful Review of Autobiography
Thank you to Ona Gritz for the wonderful review of "Autobiography" in the new issue of Wordgathering
Monday, August 25, 2014
St Mark's Poetry Project Workshop
I am teaching a workshop this Fall at St. Mark's Poetry Project.
| Tuesday, September 30, 2014 | ||
| 7:00 pm |
Tuesday, 7-9 pm: 10 sessions begin September 30
Every poet has a body which they write through and with. In this workshop we will focus on how individual impairment and the somatic experience affect poetics. We will read, discuss, and write poems based on the work of Robert Duncan, Larry Eigner, Robert Grenier, Norma Cole, CA Conrad, Bernadette Mayer, and Ellen McGrath Smith. Everyone will get a free copy of Beauty is a Verb; The New Poetry of Disability.
Jennifer Bartlett is author of Derivative of the Moving Image and (a) lullaby without any music. She is co-editor of Beauty is a Verb: The New Poetry of Disability. Individual poems are forthcoming in Aufgabe and Poetry. She is the biographer of Larry Eigner.
This workshop will be held at Abrons Art Center (466 Grand St. at Pitt St.).
Saturday, August 16, 2014
The Academy of American Poets
Than you to the Academy of American Poets for publishing my poem from Autobiography/Anti-Autobiography.The Sun Rears...
Thursday, July 24, 2014
Press Release for Autobiography/ Anti-Autoobiography
* Autobiography is a very original text for a number of reasons. Although there are many wonderful disability activists writing today, few of these have cerebral palsy and fewer are writing poetry. The primary method for "telling ones life" is memoir.
Autobiography/Anti- Autobiography directly confronts an abliest culture, not theoretically but through direct example of a so-called "impaired" woman as she moves through the landscape of motherhood, marriage, romance, work, and sexuality.
Neither completely narrative nor experimental "Autobiography" is a mix of a "story" of an alternate body told through both form and content.
In the tradition of Larry Eigner (a poet with severe cerebral palsy associated with Black Mountain and Olson's Projective Verse) Bartlett creates a new form and grammar that reflects what it would mean to write through a body with cerebral palsy. She writes:
a movement spastic
and unwieldy
is its own lyric and
the able-bodied are
She confronts her oppressors:
To be crippled means to be institutionalized, infantilized, unemployed, outcast, feared, marginalized, fetishized, desexualized, stared at, excluded, silenced, aborted, sterilized, stuck, discounted, teased, voiceless, disrespected, raped, isolated, undereducated, made into a metaphor or an example. To be crippled means to be referred to as retard, cute, helpless, lame, bound, stupid, drunk, idiot, a burden on society, in/valid. To be crippled means to be discounted as a commodity or regarded as mere commodity.
The second half of the collection is Anti-Autobiography. This part of the collection explores, not our differences, but our commonalities. Anti-Autobiography means to tell a story that can be told by anyone. Bartlett's particular story is one of a friend passing away from HIV/AIDS, another addicted to sex, and her own challenges with motherhood, an open marriage, nature, and books.Although these are particulars, the common link is suffering, happiness, and the overall getting through life. As Robert Grenier writes his preface to the book:
What is ‘my lot’ ? What’s in ‘a lot’ ? AND
Into which each has been ‘thrown’—but then, how/what to say to/of it(including love poems, if it comes to that, for some other mortal/human) . . . is articulated here admirably, beginning to end !
It is nearly impossible for me not to give books away, however, because I am "in charge" of distribution, I have to be strict with myself. I am able to send potential educators a PDF. However, if you are interested in teaching it, please also buy a hard copy. Also, think of requiring your students to buy a copy, All "proceeds" will go to a second printing, and to fund my Larry Eigner biography (since I have a publisher but no institutional backing.)
I also want to make the book ACCESSIBLE TO ALL. If anyone has ideas of how to make this work, let me know.
Friday, June 20, 2014
New Book: Autobiography/Anti-Autobiograpy
TO ORDER COPIES, PLEASE SEE PAYPAL BUTTOM ON RIGHT SIDE.
Wednesday, February 20, 2013
The Next Big Thing: On (a) lullaby without any music
What is the working title of the book?
It is the same as it is now, but the parenthesis and absence of capitol letters arrived later.
Where did the idea come from for the book?
The [Husband] poems where directly influenced by a sonnet that Lisa Jarnot wrote for her husband Thomas Evans (published in Night Scenes). The idea for the Field Guides came from experiencing the natural environment in Hood River, Oregon, and my dilettantish interest in the form of a 'field guide.' The final section came from the day I smoked marajuana with my 78 year old grandmother and a visit to the children's museum in San Francisco that had an archival room full of bones and dead things.
What genre does your book fall under?
Poetry
What actors would you choose to play the part of your characters in a movie rendition?
My life is a Noah Baumbach film, utterly. And so is this book. It's Margot at the Wedding, with slightly less drama. Slightly.
What is the one sentence synopsis of your book?
Love and birds.
How long did it take you to write the first draft of the manuscript?
My entire life.
Who or what inspired you to write this book?
Lisa Jarnot, Andrea Baker, my husband Jim Stewart, my kid Jeffrey Stewart, my dad, my Aunt Cathy, my mother-in-law, my mother, my grandmother, my two pet (wild) Cardinals, Mount Adams, Maryrose Larkin, COAS bookstore in Los Cruces, Jim Campbell, a young Japanese boy I loved named Kenzo, Emma Bee Bernstein, Eric Bartlett Chappelle, Lewis and Clark, my car Susie and Powells bookstore.
I tagged:
Sheila Fiona Black, Maryrose Larkin, Andrea Baker, and Kate Greenstreet
I tagged:
Sheila Fiona Black, Maryrose Larkin, Andrea Baker, and Kate Greenstreet
Thursday, February 07, 2013
A Rubberband is an Unlikely Instrument
My neighbor, colleague and one of my dearest friends, Andrea Baker, is the subject of the documentary A Rubberband is an Unlikely Instrument. The documentary, made by Matt Boyd, is a quiet meditation of Andrea's marriage (now ended) to the talented musician Walter Baker. This piece of cinema reflects the vision of a wonderful filmmaker, who studied with Jem Cohen. The film has been recently discussed/reviewed in Filmmaker and Variety and The Village Voice. People who do not know cinema might review it as "tedious" but those who love Anges Varda and others, will adore it for it's beauty.
One crucial thing that the reviewerd are not mentioning is Andrea's work as a poet. Andrea and I met through poetry shortly before she was chosen by Claudia Rankine for the Poetry Society Chapbook Fellowship. She has essays pertaining to marriage Here and poetics Here. Her visual poetry appears in the Current Omni-Verse and her second collection will be published in 2013 by OmniDawn Press.
I hope those interested in the film take the time to look at Andrea's work. Like the film, like Andrea, her work is a great lyric.
Monday, November 19, 2012
Far From The Tree
I have been obsessively reading (and reading about) Andrew Solomon's new book Far From the Tree. I discovered the book last week when I read a review of it in the New Yorker that rubbed me the wrong way. Solomon's book focuses on parenting and the idea of horizontal parenting, meaning parenting a child with an identity different from yours. The 900 pages of the book include chapters about Deafness, severe disability, "dwarfism", Prodigies, Trangender children, and children who turn out to be criminals.
Although the book is about parenting, it bleeds into the disability rights movement, What is disappointing about the book is that it spreads the message of Simi Lipton, Lennard Davis, Jim Ferris, Rosemarie Garland, myself, Sheila Black and many others. However, it clearly takes someone sexier with more clout to get our message across which has been largely ignored for 30 years. This is not to say that I don't love the book and am very proud of Solomon. It's only to say that we deserve air-time too! All too often is the message of disability only attended to when the more or less abled or parents are doing the speaking...and this is frustrating.
Despite this, Solomon is caring and he truly seems to get it or get most of it. He follows through on the ideas the disability is a social construction, that typical exists (but not normal). He asks the reader to look at the children as their parents do - as valid human beings, no matter how severe their impairment. He has the ideas and language down pretty well.
He does mess up (just my luck) when discussing cerebral palsy. CP is included in the "very disabled" section and he just doesn't give enough of a description for the lay reader to understand what CP is and how it varies. He follows the life of Alix, a young women with CP, but he spends most of his time describing Alix's abled helpers rather than her. He describes Alix's physical state, but says nothing about her intellectual state. To me this is scary because people with CP are so often misjudged in their brilliance. For example, all kinds of misinformation about Larry Eigner has been written so that even I was surprised at his intellectual capabilities (i.e. how many people to you know who have read Stein, Wittenstein. Pound, and pretty much everything else.) By omitting discussion of Alix's intellectual life, Solomon is doing a disservice to all people with CP who remain under judged.
He also does the disservice of quoting transgender people but not people with disabilities. This IS a book about parenting, so not as to include children's voices would be a stylistic choice, but including the voice of one group and not another reads as ableism.
The parents in this book are to be lauded the most. In a perfect world, there would be no ableism (or at least people would know what that is!!! for crying outloud!) but these are peole who were clearly ableist and through raising a child with a disability, have expanded their view of humanity and understanding. They have been brave enough to keep their children and fight for them, and what we should do for ANY child -- accept them for who they are, not who we want. And the parents, many of whom were potential uber-parenting New York rich people, openly confess to thinking they wanted a designer baby and ended up with a child with Downs or Autism and had their lives, their attitudes changed completely. Solomon doesn't dwell on parents who rejected their children, but they have had a voice for too long. It's time to have people who are disabled or raise disabled children to have a voice.
Although the book is about parenting, it bleeds into the disability rights movement, What is disappointing about the book is that it spreads the message of Simi Lipton, Lennard Davis, Jim Ferris, Rosemarie Garland, myself, Sheila Black and many others. However, it clearly takes someone sexier with more clout to get our message across which has been largely ignored for 30 years. This is not to say that I don't love the book and am very proud of Solomon. It's only to say that we deserve air-time too! All too often is the message of disability only attended to when the more or less abled or parents are doing the speaking...and this is frustrating.
Despite this, Solomon is caring and he truly seems to get it or get most of it. He follows through on the ideas the disability is a social construction, that typical exists (but not normal). He asks the reader to look at the children as their parents do - as valid human beings, no matter how severe their impairment. He has the ideas and language down pretty well.
He does mess up (just my luck) when discussing cerebral palsy. CP is included in the "very disabled" section and he just doesn't give enough of a description for the lay reader to understand what CP is and how it varies. He follows the life of Alix, a young women with CP, but he spends most of his time describing Alix's abled helpers rather than her. He describes Alix's physical state, but says nothing about her intellectual state. To me this is scary because people with CP are so often misjudged in their brilliance. For example, all kinds of misinformation about Larry Eigner has been written so that even I was surprised at his intellectual capabilities (i.e. how many people to you know who have read Stein, Wittenstein. Pound, and pretty much everything else.) By omitting discussion of Alix's intellectual life, Solomon is doing a disservice to all people with CP who remain under judged.
He also does the disservice of quoting transgender people but not people with disabilities. This IS a book about parenting, so not as to include children's voices would be a stylistic choice, but including the voice of one group and not another reads as ableism.
The parents in this book are to be lauded the most. In a perfect world, there would be no ableism (or at least people would know what that is!!! for crying outloud!) but these are peole who were clearly ableist and through raising a child with a disability, have expanded their view of humanity and understanding. They have been brave enough to keep their children and fight for them, and what we should do for ANY child -- accept them for who they are, not who we want. And the parents, many of whom were potential uber-parenting New York rich people, openly confess to thinking they wanted a designer baby and ended up with a child with Downs or Autism and had their lives, their attitudes changed completely. Solomon doesn't dwell on parents who rejected their children, but they have had a voice for too long. It's time to have people who are disabled or raise disabled children to have a voice.
Wednesday, November 14, 2012
(a) lullaby without any music
I am so happy to announce the arrival of my new book
(a) lullaby without any music from Chax Press.
You can find it Here.
Sunday, November 04, 2012
Thursday, October 11, 2012
Eigner Reading List
I am writing to you from the Dodd Research Center in Storrs Conn. The archive is a magical place. The librarians are wonderful and the resources are plenty! I stood in front of Charles Olson's copy of Moby Dick, literally.
As I go deeper down the well, I realize how important Larry Eigner was in the world of poetry and letters. Yesterday, I went through letters from Zukofski, Olson, Creeley, Anne Charters, and of course, Cid Corman. I am beginning to regard Larry as truly an anchor -- a bridge between poetries -- most notably Black Mountain and Language Poetry.
I plan (as part of the project) to retrace Eigner's reading. From the letters, I've been able to retrace the book he either read or interacted with through Corman's radio show. Here is PARTIAL list for 1956
As I go deeper down the well, I realize how important Larry Eigner was in the world of poetry and letters. Yesterday, I went through letters from Zukofski, Olson, Creeley, Anne Charters, and of course, Cid Corman. I am beginning to regard Larry as truly an anchor -- a bridge between poetries -- most notably Black Mountain and Language Poetry.
I plan (as part of the project) to retrace Eigner's reading. From the letters, I've been able to retrace the book he either read or interacted with through Corman's radio show. Here is PARTIAL list for 1956
Faulkner short stories
R. Graves/ Hercules My Shipmate
Stein
Duncan (both ‘lost on me')
I just read through the whole Maximus
Port of Glouchester / James B. Connelly
Maximus (again!)
Moby Dick
Paul Metcalf / Will West
Michael McClure / Passages
Ginsberg
Patchen
Ferlengetti ( It’s no wonder F rejected in the early part of
this year, a previous draft)
Moby Dick (again!!)
Call Me Ishmael/ Olson
Crane
DHL Am Lit.
Tuesday, October 02, 2012
Thursday, September 20, 2012
From Limits/ are what any of us / are inside: The Life and Work of Larry Eigner
From
Chapter I -- Swampscott
Swampscott,
Massachusetts is a working class New England town with a sea wall. Long known
as a seafaring fishing village, it previously hosted a large commercial fleet
in the early 1900s, which sailed daily from the bay. In the 1920s, one man in
three was a fisherman. The rest were shoemakers, shoe cutters, yeomen, farmers,
or merchants. The town currently has a tiny center with city offices in a
building referred to as the Edison Mansion -- a marker of the area. The
mansion, designed by James T Kelly, was once the home of Professor Eilhu
Thompson who founded Thompson- Houston Electric Company in a merger with Thomas
Edison. The city offices close at 1 pm. on Fridays. In the Swampscott Library,
now mostly filled with computers and Russian literature, there is a detailed history
of the town. Various important events include two incidents of whales washing
up on the shore, and Joseph Eigner being awarded a school fellowship. These details point to the nature of
the environment, an average working class small town. Although the librarians are
aware that a famous poet once lived in Swampscott, very few of his books reside
in the collection.
*
The Eigner family is one that had been
settled in the area for quite some time before Larry Eigner’s birth. His
younger brother, Richard Eigner describes his paternal grandfather, Joseph, as
a successful Lynn businessman. Lynn, the
neighboring town, was once part of the fishing village in which Larry Eigner
grew up. Richard recalls:
He
[Joseph] came as an immigrant without any resources at all…. the classic
story. He primarily became a shoe
manufacturer and when that business failed, he started another one and sold it
for a lot of money. He became connected with Yankee society in Lynn. He built a
mansion where he and his wife, Cecilia, raised eight children: three girls and
five boys, one of whom would become our father, Israel.
After selling the second shoe business,
the elder Eigner went into banking, a common business venture at the time. After
the crash of 1929, Joseph Eigner went bankrupt and the
financial situation became dire. However, he had been keeping real estate in his
wife’s name so the property remained in the family. One of these houses would
later become the place where Larry Eigner would spend most of his life.
In the crash, the elder not only had his large family to support but
also in-laws and an extended family. The stress was too much for him and he
died shortly after. However, Larry Eigner’s, Israel, father grew up in the
environment of a large, successful family. Israel would go onto the attend
Dartmouth before settling down with a girl from a neighboring town.
While Bessie Polansky had a less
materially secure childhood, Larry Eigner’s mother was raised as a typical New
Englander, spending her childhood in Salem, Massachusetts opposite the House of
Seven Gables. Eigner wrote of his mother, whose parents immigrated from Lithuania, “brought here from Chagall’s home town
(Slonim) at age 1 by grndma Polansky- 30-odd yrs ago ma thght aloud a few times
how her family and/or the town must be going up in Nazi smoke, let’s say.” Richard
describes his mother as “bookish and the star pupil, according to her account,
of Salem High School. She completely absorbed the Puritanical work ethic and
the high validation of literary culture.” It was this combination that would
become crucial in the raising of her sons. Her interest in Shakespeare,
Longfellow and traditional poetry would be the launching point of her eldest
son’s vocation.
*
Lawrence Joel Eigner was born on August
7, 1927 in Lynn. Eigner, who would be the oldest of three boys, described the
event of his birth as:
A
forceps injury..…. The doctor Richard Williams, Mother says, apologized for not
measuring her right. If he had, she’s said, I would have been delivered in the
Cesarean [stet.] way. The doctor told my folks they could sue him for
malpractice, but considering the thing an accident or something they let it
go…..Either my mother was too small or I was too big.
It is unclear whether the Eigner family
knew immediately that their eldest had cerebral palsy. Upon her son’s birth,
Bessie began recording the events in a baby book, which would later include
details of his two brothers as well. In her impeccable handwriting she notes
her first son’s development:
Sept.
26, 1927; baby began to follow voices…baby cooed today on his second month’s
birthday, and during the week he started to try to raise himself in a sitting
posture….
All these notes point to average
occurances in the infant’s development. However, his physical difference would later
be noted. On March 3, 1930, Bessie writes:
Larry
talks not vey plainly but well enough to be understood. He seems to have a very
good memory. He knows quite a number of nursery rhymes. At the end of last
summer he began to sit without back support. Although there seems to be little
improvement in his left side --it isn’t very marked. I find that excitement upsets
him, must be very careful.
In biographical information about the
poet, Richard writes:
Along with the identification of Larry's birth injury as
cerebral palsy came the widely accepted claim that his disability impaired
cognitive capacity, as if limitation on Larry's mental development would match
limitations on his capacity to manage his body's physical movements…Bess would
not accept this claim…..It was my mother’s campaign to have
Larry educated as much as he was. At that time, it was thought that children
like Larry could not be educated.
The family lived on Pine Street in
Swampscott for two years after Eigner’s birth before moving to 23 Bates Road. Here,
the poet would spend the first 50 years of his life rarely venturing out with
the exception of three years of schooling at the Massachusetts Hospital School
and summers at Camp Jened for the Handicapped in New York State. Richard
describes that house at 23 Bates Road as a traditional New England two family
residence. At first, the Eigners, lived on the second floor while renting out
the first.
This
arrangement must have been difficult for Bessie. As they lived upstairs, the
young poet rarely went out and it was up to his mother to move him from room to
room. Soon, the family moved to the
first floor and the glassed-porch would become the poet’s studio. It would be
from this porch that Eigner would observe the nature and all the neighborhood
coming and goings.
23 Bates Road is now part of an upper
class neighborhood with well-kept houses, most of which have large additions.
In the 1920s, though, Italian immigrants, with the exception of the Eigner
family, inhabited the short street. Richard describes “the principal address” as:
A
tract of land on which a house was built. Most of it [the street] was undeveloped.
On the tracts that had been developed, all the
families except
for one, came from the same part of Italy
on the Adriatic Sea: a very impoverished town
called Terre.
They all had the same name, Matera and almost
of them were general contractors.
Although the sea was within a few
blocks, one would have to take a windy trail that would have been impossible to
navigate with an old-fashioned wheelchair. Bates Road is crossed with Charlotte
Street, named after an Eigner cousin, led to a dead end and forest. Richard
notes:
You
walked through a woodsy path and came to a beach. We did have a big
bulky wheelchair for outside. We were
always aware that the whole Atlantic Ocean was out there. We could hear the
sound…there were things like waves and so forth, but to get to the beach, you
had to go through a real wooded swamp-like area through skunk cabbage; I
remember pushing that wicker chair through the woods.
Despite the rarity of such journeys,
the ocean would become a main character in both Eigner’s early and later poems.
*
Bessie had her son involved in physical
therapy from early on. In an interview, Eigner describes:
As
a kid, physiotherapy was the hardest part of the time (I went to the clinic in
Boston’s Children’s Hospital 3 times a week then at the age of 10 or 11 stayed
there as an in-patient for a few months) real scary, like mountain climbing on
a seesaw when I tried walking, and perverse failure when flexing my left ankle.
All things else were like physiotherapy (While my folks would walk me too, from
bedroom to kitchen standing behind holding me: I’d also sit on chairs as well
as armchairs, and travel, before I had the walker, around the house on my
knees.)
From
Chapter Five: Cid Corman’s Radio Program
The beginning of Eigner’s lifetime correspondence
with poets started with a postcard to Boston poet Cid Corman who had a radio
show. This letter was the connection that would lead Eigner into the world of
poetry. The poet describes the event:
In
1949, a couple of months after finishing up the last course (at the U of
Chicago) I bumped into Cid Corman reading Yeats, on the radio, in his first
program, I gather, for Boston. I disagreed with his non-declamatory way of
reading and wrote him so. This began a correspondence in which I got introduced
to things, and the ice broke considerably.
Although just three years older, Corman
quickly took on a mentorship role to the “younger poet.” In April 1950, shortly after their
correspondence began Corman writes, “Your writing pleases me. It is gratifying
that you have only taken criticism, but persisted with it to the point of
improvement.” He follows with, “You must teach yourself – and be patient with
yourself. If you can’t be, who else is likely to be -- as who else can
positively care as much?”
It was through Corman that Eigner’s
interest in poetry was rekindled after a pause from his engagement with it as a
teenager. Both through his correspondence courses with the University of
Chicago and his mother’s influence, the poet had exclusively been exposed to
more traditional poetry. Well into his teenage years, he continued to write
rhyming verse. Not only was this what his was familiar with, but also poetry in
rhyme made it easier to retain while waiting for a family member to transcribe
it. His first collection, Poems,
published in 8th grade was a reflection of such. Though, the poet was not
reading Longfellow exclusively. By the time he wrote to Corman, he was deeply
involved with e.e. Cummings and Hart Crane.
As Eigner continued to correspond with
the Bostonian and send him poems, Corman encouraged his friend to be more open
and experimental. It was through this exchange that Eigner began to leave
behind the poetry of his youth in what Richard describes as “rebelling against
his mother.” Corman, perhaps sensing
rebellion writes, “Fewer people who liked your earlier things will like these
newer pieces, but I think you must realize yourself how much better they are.” Corman
advises, “If you are unsatisfied with a poem, any part of it, keep at it. Say
exactly what you want to – that is, keep the overtones, ambiguities, tied to
your ideas. Pack your words tight – and yet naturally.” He also mentions, “You might look over some
Williams” for a reference to directness.
The concepts of “immediacy and
force” were two considerations that would stick with Eigner throughout his
vocation.
Despite
Corman’s worry that “some people would not like his work” Eigner began
publishing shortly after this first correspondence. According to Curtis
Fayville:
Eigner's
first published poem--aside from a number of juvenile pieces published prior to
age 14--appeared in the fugitive little magazine Goad #3 [Summer 1952], edited by Horace Schwartz. Schwartz was a
connected participant in the literary world of the Bay Area in the 1950's and
'60's, who knew Rexroth, Kees (both he and Schwartz had come from Nebraska) and
many other local figures, and briefly ran a bookstore in San Francisco (Named
the Rexroth bookstore). Goad lasted
for four issues, and also published early work by Creeley and Ferlinghetti.
Corman’s own magazine Origin had its beginnings in 1950 with a
correspondence, previous to the magazine’s publication, between Charles Olson
and the editor. Of the magazine, the first contributor, Olson, writes, “The
thing you ought to know, is, that you have the will to make a MAG is a very
fine thing, and is hailed by this citizen.” Olson urges Corman to resist taking
money from the University (in this case Brandeis) as he worries that the
association will damage the integrity of the magazine. He writes:
yr
two letters arrived today, about BRANDEIS. But I am here most practical: the test
you are looking for, of such censorship as Lewisohn, Hindus and Elder Gerard
is, precisely, these 50 pages, NOT, the first year of yr editorship. For you
will put yourself in the position of earning their approval, invariably, that
you will woo it, that first year. Which, my friend, is worse than outright
censorship.
Olson pushed to use the first issue
of Origin as a platform for his work
- what would become the Maximus Poems - urging Corman, “Can you, will you, by
some means (even a notary, maybe?) give me absolute assurance you will (despite
all weathers, fair or foul) give me the 40 pages of issue #1 you have told me
you plan to give me?” And on the envelop
of a letter dated March 1, 51, Olson writes, “O my sone, rise from thy
bed…/work what is wise.” This became the “motto” for Origin securing Charles Olson’s hand in the venture. *
From Chapter 10 Berkley/Independent Living
The Independent Living Movement had its
early beginnings in 1962 when Ed Roberts applied to the University of
California, Berkeley. Roberts was rejected by the Dean on the grounds, “We have
tried cripples before and it didn’t work.” In addition to non-accessible
classrooms and libraries, a major issue for Roberts was that there was no
dormitory that could support the iron lung he slept in as treatment for polio. The attitude of the time was best expressed
by the poet Josephine Miles who thought of the inaccessible campus as “simply
not being built for me.” Miles, who had acute rheumatoid arthritis, dealt with
the issue of mobility by being carried from location to location by assistants
rather than using a wheelchair. She,
like most of society, viewed disability as a personal problem.
However, with Roberts persisting, the
school soon agreed to let him reside on the third floor of Crowall Hospital and
enlist fellow students to help him get around campus. He joined with others to
form the activist group, The Rolling Quads. In 1968, when the Quads faced eviction, they
organized a revolt that would lead to the creation of curb cuts and other
accessibility - on and off campus. Robert’s revolution also led to the Physically
Disabled Students Program (PDSP).
PDSP took its ideas from a program that
gave minorities resources to prevent dropouts. Out of this came the first
Center for Independent Living (CIL). The basis of the CIL was to provide people
with disabilities complete control over where and how they wanted to live.
Previously, people with disabilities had been resigned to spending their lives in
institutions or, in rare cases such as Eigner’s, provided for by their
families. In both cases, neither led to a choice
of lifestyle. Wheelchairs themselves were not geared toward independence
nor thought of as mobility tools, hence the outdated expression “wheelchair
bound.” They were devices that provided limited movement in hospitals or at
homes.
Instituted in 1972, the Center for
Independent Living was run by people with disabilities who had control over who
their caretakers would be and where they would live. The founding of the CIL
coincided with Judy Heumann’s civil rights struggle in New York City. In 1970,
Heumann, a quadriplegic who had had polio, was denied a license to teach in New
York City Public Schools despite passing the oral and written tests. When she
flunked the physical, Heumann sued the Department of Education with a
discrimination charge, and the case was settled in the defendant’s favor. If
these events crossed the Eigner’s path in his copious reading, he did not
mention it in letters. However, the movement was not alien to Richard. It was
with the expectation that Richard would eventually take over his mother’s role
as caregiver that he set up house in Berkeley.
This was the environment that Larry Eigner
moved into when he arrived in the west in 1978. After Israel’s death, it became
clear that Bessie would be unable to care for her son herself. Once in Berkley,
Richard became the poet’s legal conservator, and it was his intention that his
brother become as independent as possible.
The
stab at independence didn’t work out as successfully as the poet’s family had
hoped. On January 6, 1978 Eigner notes, in a letter to Bessie, “electric [wheel]chair
arrived fifteen days ago.” This was his first and meant to provide new
independence, particularly in the accessible landscape of Berkeley. But things
with the chair weren’t so easy. The poet describes an accident of falling over
on campus, “legging myself up with the help up and back with the help of a cop
and a passerby.” He complained:
It
won’t fold and the batteries, a big job to move, make it too heavy to lift. We
agreed, too, it’s not so good for around the house. For instance, I can push
backward with my feet, but not forward, it’s soo hvy, and my hand is kept
rather busy driving.
Ultimately,
he abandoned the new technology for the old, continuing, as he always had, to
“scoot” throughout the house in his manual chair.
Upon first arriving in Berkeley,
Richard encouraged the poet to settle in a group home (independent living)
situation. Eigner, however, who had described his life as “the longest
childhood ever,” was recalcitrant against the independence that Richard and his
sister-in-law Beverly encouraged. At
first, he lived in a group home similar to the Center for Independent Living on
La Loma Street. Throughout letters to his mother, one gets to know his
housemates, the attendants, and the poet’s frustration with them. The house itself, although Eigner didn’t entirely
hate it, was an environment of endless drama, particularly around the
staff. He laments to his mother:
The
phone’s been disconnected again, 2nd time this year. This time when
Anna some weeks ago got a private extension of the one downstairs here was
switched to L’s room (L is the attendant who arrived from Philly Easter Monday
and the phone company, getting wind of this and disapproving has disconnected.
This is the story I get anyway….One remark was that one of the attendants
charges her (Adele) when he reads to her (the newest ord…after all).
Cid Corman suggested, “You sound
like your living in the center of a 3-ring circus – and enjoying every minute
of it. It don’t sound like the porch in Swampscott.”
However, the Center for
Independent Living didn’t have the facilities that the Eigners had hoped. Beverly
Eigner remembers:
We thought it
would be a good resource for Larry when he came out here, but it didn’t work
out that way. Perhaps The Center was too early in its evolution but it didn’t
really help us at all. Actually, it was negative because on two occasions, I
brought him into a socialization group, and they said Larry was ‘too spoiled.’ [I]
Took him to Cerebral Palsy Association and Larry told them all he could do and that
he didn’t need any help which was frustrating because he didn’t listen to what
they offered. But we found that he needed some social interaction outside of us
because we would cater to his needs and not every one would. So that was a
problem, socially.
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